It's hard to think I'm going to be 26 with a pace maker. It's kinda scary, I mean, I'm just barely old enough to rent a car! I know there are patients younger than me who have pacemakers, but it's still kinda scary. I've had all kinds of thought running thru my head. I know it will give me longevity and hopefully more energy. But sometimes I wonder how I'll be right after the pacemaker is put in. Will I be able to pick up Danger? How will the stitches limit me? How long will I be out?
Ok, I got it done on Monday. I have come to realize, I wake up from anesthesia like a beast. Apparently, I said my pain was a 9! Which I'm not entirely sure it was a 9..... Anyways, I didn't threaten too many people, so everyone was still friendly.
The Dr's tested my pace maker, and everything worked great. No disruptions, everything worked amazing. Well, I woke up and started to walk around a bit. Once I sat back down, my stomach started spasming, it was just like the bottom part of the hiccups. Well, it was like 10pm, the nurse called the on call doctor, who thought it could have been my body's response to pain or it could be my being blocked up. So they gave me morphine and miralax. The morphine apparently worked so they didn't pursue it much farther, until the morning.
As soon as my cardiologist walked in, I showed her my hiccups. She immediately said, Oh no! And she explained that my diaphragm was getting paced along with my heart. In normal anatomy, the leads go in right atrium and the right ventricle. In my backwards anatomy, my leads go in the left side. The phrenic nerve come down from the neck (C3-C5), the nerve splits and the left phrenic nerve passes over the pericardium of the left ventricle and then down to the diaphragm. (My nerves are in the correct location, it's my heart that is backwards... So the nerve goes around the back of the heart, where my leads are positioned....) So when the charge goes down the leads, it catches the phrenic nerve and my diaphragm is paced right along with my heart, which right now is set at 60 bpm.
So 60 heart beats and 60 hiccups... It doesn't hurt, it's just really really annoying. And when I'm talking, I can't get enough breaths, well enough deep breaths. Plus, when I'm hiccuping, I don't want to eat anything cuz my stomach is getting tossed around and I don't want to hurl....
Anyways, the Dr's have tried programming my pace maker to lower voltage and all kinds of combos so my diaphragm doesn't pace with my heart. But the end result is they can't keep me at a lower voltage for an extended period of time, if my heart were to build up a resistance to the charge, the pace maker wouldn't do any good. So on Tuesday, the Dr's are going to replace the pace maker and reposition the leads so my diaphragm won't beat with my heart.
So yeah... that's happening. I don't have a lot of pain, but I can't lift my left arm above my shoulder, and I can't lift more than 5 lbs with it. So basically, Danger and I have been just sitting around the house, watching TV, so you know, nothing out of the ordinary. :)
I've been doing good, it's just hard when things hurt. Also, this morning, when I sat up in bed, I swear I could feel the pace maker slide into place... It was soooooooo freaking weird. Danger has been good, he's been fussy, but he's been just fine walking every where, and he usually doesn't need to be picked up, so I'm grateful he's good with me not holding him. We've also been sleep training him in places other than his crib. So he had NO problem at all sleeping at grandma's and napping at Katie's. Which is awesome. We were kinds worried about it. Shark has been such an amazing help, he's been wonderful. :)